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<p><strong>Welcome to the public repository for the COPE Study (Covid-19 and Perinatal Experiences Study).</strong> </p> <p><strong>COPE Survey:</strong> \ We have developed a survey assess the impact of the COVID-19 outbreak on the feelings and experiences of pregnant women and new moms. The survey was developed by Moriah Thomason (NYU), Alice Graham (OHSU), Elinor Sullivan (OHSU) and Michelle VanTieghem (NYU), with feedback from several colleagues, including Jennifer Ablow, Sarah Jensen, Amy Elliott, Akhgar Ghassabian, Julie Croff, Chris Smyser, Elizabeth Krans, and Natalie Brito.</p> <p><strong>References:</strong> Some survey questions were obtained from standardized questionnaires. These include the <a href="https://psycnet.apa.org/doiLanding?doi=10.1037/t07502-000http://" rel="nofollow">Brief Symptom Inventory 18</a> (omitting suicidality), subset of questions from the the <a href="https://www.ptsd.va.gov/professional/assessment/adult-sr/ptsd-checklist.asp" rel="nofollow">PTSD Checklist for DSM-5</a>, and mental health & substance use questions from the John's Hopkins COVID-19 Mental Health Measurement Working Group.</p> <p><strong>Languages:</strong> The surveys are available in English, Spanish, Dutch, German, Portuguese, Brazilian Portuguese, and French. Spanish translation was completed by Claudia Espinoza (NYU). The Dutch translation was completed by Marion van den Heuvel and Myrthe Boekhorst (Tilburg University) and Roseriet Beijers and Annefleur Veems (Radboud University). The German translation was completed by Julia Moser, Franziska Schleger, Julia Hartkopf, and Ilena Bauer (University of Tübingen). The Portuguese translation was completed by Ana Mesquita, Joana Antunes, Rita Pereira, Sara Martins, Isabel Soares, and Adriana Sampaio (University of Minho - Portugal). The Brazilian Portuguese translation was completed by Vera Mateus, Helena Nash, and Ana Osório. The French translation was completed by Flora Koliouli (University of Toulouse). The Greek translation was completed by Eleni Vousoura (University of Athens). </p> <p><strong>REDCAP:</strong> To facilitate harmonization of future data collected from this initiative, we have also provided a zip folder of the associated REDCAP project in both english and spanish.</p> <p><strong>IRB examples:</strong> To facilitate the dissemination of the surveys at different sites and institutions, we have provided example IRB materials, which includes digital consent forms, protocols, recruitment materials, and resource pages for participants. </p> <p><strong>Follow-up surveys:</strong> Since the impacts of COVID-19 are changing at a rapid pace, we plan to conduct longitudinal assessments on a weekly basis. Schedule is provided here: <a href="https://osf.io/uqhcv/wiki/Longitudinal%20survey%20measures%20protocol/" rel="nofollow">https://osf.io/uqhcv/wiki/Longitudinal%20survey%20measures%20protocol/</a> </p> <p><strong>Additional Resources: Relevant questionnaires</strong> </p> <ol> <li> <p>Assessment of COVID-19 Experiences in Adolescents. Available here: <a href="https://osf.io/py7vg/" rel="nofollow">OSF repository</a></p> </li> <li> <p>NIMH Coronivirus Health Impact Survey. Available here: <a href="https://github.com/nimh-mbdu/CRISIS" rel="nofollow">Github repository</a> </p> </li> <li> <p>Core Questions from the COVID-19 Mental Health Measurement Working Group, Johns Hopkins School of Public Health. Available in Dropbox/Additional Resources.</p> </li> <li> <p>Coronovirus Impact Scale (Stoddard Kaufman, 2020). Available in Dropbox/Additional Resources</p> </li> <li> <p>COVID-19 Interview Items for Vulnerable Populations <a href="https://clelandcm.github.io/COVID19-Interview-Items/COVID-Items.html" rel="nofollow">Resource list</a>, compiled by Center for Drug Use and HIV at NYU School of Global Public Health.</p> </li> <li> <p>Irritability in Infants, Toddlers and Preschool Age (Wakschlag). Available in the Dropbox/Additional Resources.</p> </li> <li> <p>Difficulties in Emotion Regulation Scale for COVID-19 Pandemic (DERS-COVID; Crowell, Gao, & Conradt, 2020). Available in Dropbox/Additional Resources.</p> </li> <li> <p>Breastfeeding Information Questionnaire (Howell). Available in Dropbox/Additional Resources</p> </li> </ol> <p><strong>Additional Resources: COVID platforms for collaboration</strong></p> <ol> <li> <p>World Pandemic Research Network (WPRN). This platform aims to reference, share, publish the list of all research initiatives and surveys on the current impact of the Covid-19 pandemic on economic and social activities. Researchers are encouraged to register their projects at: <a href="https://wprn.org/" rel="nofollow">https://wprn.org/</a></p> </li> <li> <p>COVID-19 Mental Health Research Network, a project of the Global Collaboration of Traumatic Stress. <a href="https://www.global-psychotrauma.net/c19-mentalhealthnet" rel="nofollow">https://www.global-psychotrauma.net/c19-mentalhealthnet</a>. </p> </li> </ol> <p><strong>Additional Resources: COVID translation services</strong></p> <ol> <li><a href="https://covid19healthliteracyproject.com/#" rel="nofollow">https://covid19healthliteracyproject.com/#</a></li> </ol> <p><strong>Additional Resources: Funding for COVID biomaterial assay development</strong></p> <ol> <li>NIH POCTRN: Fast-Track Program for COVID-19 Test Development and Distribution: <a href="https://cimit.net/web/poctrn/about" rel="nofollow">https://cimit.net/web/poctrn/about</a></li> </ol>
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