## General Series Information Registration info for all sessions: https://bit.ly/ubcrdm2020 General Library and ARC info (for Helpers only, to refer people): https://osf.io/4h7ms/wiki/home/ Twitter hashtags and handles for livetweeting: https://osf.io/4h7ms/wiki/Twitter%20Info/ <hr/> ## Information for Luc's Presentation Information Security Policy, Standards and Resources: https://cio.ubc.ca/information-security/information-security-policy-standards-and-resources UBC Privacy Matters: https://privacymatters.ubc.ca/ ## Information for Nick's Presentation Today's materials are available in the OSF: https://osf.io/hv9pf/ Office hours for today's session: https://libcal.library.ubc.ca/event/3566647 **Where to Find Help** ARC website: https://arc.ubc.ca/ ARC contact. arc.support@ubc.ca Library website: https://researchdata.library.ubc.ca/ Library contact: research.data@ubc.ca UILO Website: https://uilo.ubc.ca/researchers/research-partnerships/creating-research-partnerships UBC UILO Contacts: https://uilo.ubc.ca/about-us/contact-us IRSI Website: https://irsi.ubc.ca/about IRSI Contacts: https://irsi.ubc.ca/contact OCAP Principles: https://fnigc.ca/ocap CARE Principles: https://www.gida-global.org/care TK Labels: https://localcontexts.org/tk-labels/ UBC BREB: https://ethics.research.ubc.ca/behavioural-research-ethics UBC Okanagan BREB: https://ors.ok.ubc.ca/ethics/ UBC CREB: https://ethics.research.ubc.ca/clinical-research-ethics UBC Ethics Contacts: https://ethics.research.ubc.ca/about-human-research-ethics/contact-us **Data Policies** Draft Tri-Council RDM Policy: https://www.ic.gc.ca/eic/site/063.nsf/eng/h_97610.html UBC Scholarly Integrity Policy (data retention): https://universitycounsel-2015.sites.olt.ubc.ca/files/2020/07/Scholarly-Integrity-Policy_SC6.pdf CIHR Policy (data retention): http://www.science.gc.ca/eic/site/063.nsf/eng/h_F6765465.html?OpenDocument Guidance Document for Clinical Trials (data retention for Health Canada): http://www.science.gc.ca/eic/site/063.nsf/eng/h_F6765465.html?OpenDocument **Consent / Ethics Resources** UBC Behavioural Consent Form Guidelines: https://ethics.research.ubc.ca/sites/ore.ubc.ca/files/documents/Behavioural_ICF_Guidelines.doc UBC Clinical Minimal Risk Consent Form Template: https://ethics.research.ubc.ca/sites/ore.ubc.ca/files/documents/CREB-Minimal%20Risk%20Consent%20form%20template%20Feb2020.docx BC Wide Clinical Consent Template: https://ethics.research.ubc.ca/sites/ore.ubc.ca/files/documents/BC-Common-Clinical-Informed-Consent-Template-Guidance-February-07-2019.docx Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans - TCPS2 (2018): https://ethics.gc.ca/eng/policy-politique_tcps2-eptc2_2018.html **Portage Resources for Sensitive Data** Sensitive Data Toolkit for Researchers Part 1: Glossary of Terms for Sensitive Data used for Research Purposes: https://zenodo.org/record/4060159#.X4CanO17mUk Sensitive Data Toolkit for Researchers Part 2: Human Participant Research Data Risk Matrix: https://zenodo.org/record/4060449#.X4Caye17mUk Sensitive Data Toolkit for Researchers Part 3: Research Data Management Language for Informed Consent: https://zenodo.org/record/4060461#.X4CbEO17mUk Guide to COVID-19 Rapid Response Data Sharing and Deposit for Canadian Researchers: https://zenodo.org/record/4042030#.X3ZWtu17mUk Recommended Repositories for COVID-19 Research Data: https://zenodo.org/record/4042037#.X3ZWPe17mUk De-identification Guidance: https://zenodo.org/record/4042023#.X3ZWW-17mUk Can I Share My Data?: https://zenodo.org/record/4041661#.X3ZWl-17mUk Documentation and Supporting Material Required for Deposit: https://zenodo.org/record/4042034#.X3ZWT-17mUk **Additional Resources** HIPAA Personal Health Identifiers: https://www.hipaajournal.com/considered-phi-hipaa/ BMJ list of identifiers: https://www.bmj.com/content/340/bmj.c181 De-Identification & K-Anonymity Webinar: https://www.youtube.com/watch?v=X3MKP_-FrWE Amnesia (K-Anonymity software): https://amnesia.openaire.eu/ De-Identification Guidelines for Structured Data: https://www.ipc.on.ca/wp-content/uploads/2016/08/Deidentification-Guidelines-for-Structured-Data.pdf **Session Exercise** OSF Wiki: https://osf.io/hv9pf/ Padlet: https://padlet.com/nickrochlin/9jclquql8xrmar64