Introductory video: [https://youtu.be/Ocp87tCiqWM][1] ** **Family-Centred Cardiac Arrest Care Project Advisory Committee Terms of Reference** ** **Purpose** We will undertake scholarly work together that improves the quality of care experienced by families during cardiac arrest. **Composition** We will be a group of no more than thirty people (identifiable and anonymous) who have lived experience and/or expertise in cardiac arrest care. We will draw representation from cardiac arrest survivors, their family members and relevant clinicians and scientists. All members of the advisory committee will be volunteers and may leave the committee at any time. **Publically Identifiable Membership** *Samina Ali* is a pediatric emergency doctor at the Stollery Children's Hospital, pain reseacher at the University of Alberta, wife to an amazing emergency doctor, and mother to three vibrant, lovable teens. In late 2017, her work and home lives collided when she performed CPR on her healthy, active husband, in the middle of the night. The weeks that immediately followed, and the people they met, have shaped their family's life and perspectives. Samina enjoys the stillness found in reading, yoga, and poetry. *Allison Bone* (Al) is a registered nurse, research coordinator in ICU at a regional hospital in Victoria, Australia and doctoral student. Her doctoral research is focused on exploring the lived experience of haematological malignancy and critical illness. Allison's best friend and colleague, Tania had a sudden, unexpected cardiac arrest while mountain biking in March 2019. She was admitted to the ICU and after being diagnosed with a catastrophic hypoxic brain injury, Tania was able to be an organ donor. She is married and the owner of two shetland sheepdogs who love long walks. She enjoys growing vegetables, cooking and spending time with family and friends. *Matthew Douma* (Matt) I am a doctoral student at University College Dublin and a registered nurse located in Edmonton Alberta Canada. I am also grandson to Paul Massey (obituary https://tinyurl.com/y7x35epa) who did not survive a sudden cardiac arrest at his home in 2017. I am a father to 3 kids aged 5, 3 and 1 who I lovingly spend all my free time with. My hobbies (used to) include mountain biking, skiing and martial arts/grappling. *Louise Wiltshire* from Birmingham, UK. I am the mother of 3 children, aged 18, 12 and 11. I am a Special Needs Support Teacher by profession, but I am currently taking time out to care for my children due to all 3 experiencing some kind of difficulties with mental health. My eldest is High Functioning Autistic, my middle child has severe anxiety, and my youngest has ADHD and Autism. My boyfriend, a police officer, suffered a cardiac arrest, following a massive ST-elevated Myocardial Infarction in February 2020, at the age of just 40 years old. I have started to write a blog about this from a family member's experience of cardiac arrest and the aftermath, and how it has affected me personally, to try and help others going through a similar experience, as I found the lack of support available to loved ones of the patient that suffered the cardiac arrest, was a factor in why I struggled to deal with the impact on myself for a short time. K*im Ruether* is mother of four, an X-ray technologist and CPR (BLS) instructor with Alberta Health Services in Fairview, Alberta. She became the founder of Project Brock Society (www.projectbrock.com) following the 2012 sudden cardiac death of her 3rd child- 16 year old Brock. She is just finishing her MA in Leadership, and enjoys adventures with her remaining kids, family and friends. She loves hiking, refinishing old furniture, driving tractors, poetry, pottery, painting and reading. **Definitions** **Cardiac arrest**: a sudden and unexpected loss of heart function. **Family**: as determined by the person of interest, a family is composed of persons both related and unrelated to the patient, who provide support and with whom the patient has a relationship of significance. **Family-centred care**: acknowledges the position, importance and contribution the family-members patients often make by acting as patients’ representatives, surrogates and decision-makers. **Anonymity and Confidentiality** This project is being conducted in a maximally open and transparent manner. All portions of the project are freely available and auditable on the Open Science Framework: https://osf.io/fxp5g/ If you wish to be an Advisory Committee member you may do so anonymously. If you do not require anonymity, and you are comfortable sharing your story, you will be added as a collaborator and an author should you fullfil authorship criteria for publication. **The proposed workflow is**: 1. Scoping review of research involving families during cardiac arrest care 2. Meta-synthesis of qualitative research studies describing the experience, views or needs of families experiencing cardiac arrest care 3. Some combination of interview, focus groups +/- surveys, that are informed by the above work and designed to help understand what family members need The ultimate practical output of this work will be a multimedia toolkit for cardiac arrest care providers. Perhaps a Cardiac Arrest Family Needs Inventory or similar tool. We will work to get family-centred cardiac arrest care in major internaitonal resuscitation guidelines and EMS/hospital policy and procedures. [1]: https://youtu.be/Ocp87tCiqWM