![enter image description here][2]
[Full report][1]
Patient and Public Involvement (PPI) is the integration of patient and public perspectives into health research, ensuring those affected by research outcomes shape its direction and implementation.
This study dives into the realms of PPI within cancer research. Through in-depth interviews with a diverse range of voices (patient representatives, research professionals and research professionals with lived experience of cancer), the research aims to provide a more personal understanding of the current PPI landscape. It recognises both its inherent value and the challenges it faces, such as the risk of superficial involvement or the potential dilution of the patient voice. Key themes emerged, including the importance of harmonious communication, the motivations driving PPI, the challenges and opportunities surrounding accessibility and diversity, and the power of a co-creative and human-centric approach.
The insights gained provide practical suggestions for refining PPI's role in cancer research. This work delves not only into the 'how' but also the 'why', offering recommendations that hope to contribute to ongoing discussions and practices.
[1]: https://osf.io/243xn/files/osfstorage/65a80d801c92110d6babe99f
[2]: https://mfr.osf.io/export?url=https://osf.io/download/5cr7t/?direct=%26mode=render&format=2400x2400.jpeg