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PEMS project: Participatory evidence synthesis in multiple sclerosis and complementary therapies
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Description: Multi-phase participatory research project to enhance the relevance and access of clinical research in MS and complementary therapies
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Components
1. Survey: priorities of people with multiple sclerosis in Switzerland for complementary therapies
We will ask pwMS in Switzerland about which complementary therapies they use, the reasons and symptoms for using them, and the expectations on their p...
2. Complementary therapies for multiple sclerosis: a scoping review
This scoping review will inform the core outcome set (COS) and an Evidence and Gap Map (EGM) that will be developed in the PEMS project
3. Core outcome set (COS) for studies of complementary therapies in multiple sclerosis
We will produce an international, multidisciplinary, pwMS-relevant COS for studies evaluating the effects of complementary therapies in pwMS.
4. Interactive online Evidence and Gap Map (EGM) with research studies evaluating the effects of complementary therapies on relevant outcomes for pwMS.
The EGM will systematically compile the best research evidence assessing the effects of complementary therapies on pwMS-relevant outcomes (see COS).
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