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**Aim** We aimed to develop a person oriented, reliable and valid patient reported outcome specific to daily upper limb activities relevant to people with tetraplegia. The predefined criteria of the new measure were the following: 1. A patient-reported activity measure, explicitly measuring activities using upper limb function for individuals with tetraplegia, typically C5- C8, but also higher incomplete injuries with preserved function in upper limbs; 2. Able to be administered as a questionnaire (paper and electronic), thus enabling remote follow-up outside clinic appointment visits; 3. Fast and easily administered for the individual and clini- cians; 4. Stable psychometric properties, to be used for clinical and research purposes.
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