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Category: Project

Description: . Aim We aimed to develop a person oriented, reliable and valid patient reported outcome specific to daily upper limb activities relevant to people with tetraplegia. The predefined criteria of the new measure were the following: 1. A patient-reported activity measure, explicitly measuring activities using upper limb function for individuals with tetraplegia, typically C5- C8, but also higher incomplete injuries with preserved function in upper limbs; 2. Able to be administered as a questionnaire (paper and electronic), thus enabling remote follow-up outside clinic appointment visits; 3. Fast and easily administered for the individual and clinicians; 4. Stable psychometric properties, to be used for clinical and research purposes. Results The TUAQ is a a 10-item, 5-response patient-reported outcome measure assessing performance and satisfaction with activities targeted to the upper extremity for individuals with tetraplegia. The TUAQ demonstrates good psychometric properties for reliability and agreement for persons with tetraplegia and responsiveness and construct validity for surgical reconstruction of hand function for persons with tetraplegia. The TUAQ appears appropriate to be used as a patient-reported outcome measure for clinical and research purposes in this population.