**Overview**
Data regarding human subjects can pose a number of unique challenges, and language that is articulated during the Ethics application and in consent forms has the potential to unnecessarily restrict what can be done with the data. This course will introduce considerations when dealing with sensitive data, including levels of access, consent forms, direct and indirect identifiers, and will introduce the process of data de-identification and considerations.
**Presenters**
Nick Rochlin is the Research Data Management Specialist in UBC’s Advanced Research Computing team. He is active in the Portage Network of RDM professionals, co-chairing the Training Expert Group and the Institutional Strategies Working Group, and an active member of the FRDR User Experience & Training Group.
Luc Letarte is a Security Analyst with the Sensitive Research team, at UBC Advanced Research Computing. He is a graduate from the University of Québec in Montréal and holds many years of experience in different segments of the public and private sector including financial, legal and health care. He specializes in information technology governance, privacy and security.
**Objectives**
- Introduce considerations when dealing with sensitive data
- Introduce security and privacy considerations
- Discuss de-identifcation and potential issues with process
- Discuss considerations where depositing sensitive data into a repository
**Outcomes**
- Identify privacy and security considerations throughout data lifecycle
- Explore the language of consent forms in regards to data sharing
- Identify direct and indirect identifiers
- Identify tools/techniques for de-identification and considerations