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Understanding the neurodiversity of grief: a systematic literature review of experiences of grief and loss in the context of neurodevelopmental disorders
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Description: This systematic review explores lived experiences of grief in the context of neurodevelopmental disorders (NDDs), considering mental health impacts and how these experiences are expressed/understood. Reviewing qualitative research and grey literature centred on lived experience, 39 articles were identified through a systematic search of 8 databases and 1 page-ranked search engine. The articles were critically appraised, and results synthesised using thematic analysis and meta-synthesis. Four main themes and an overarching theme, titled Recognise the Unrecognised, emerged: Hidden Grief, Supported & Included, Understanding My Loss, and The Double Taboo of Death & Disability. The results indicate that grief often goes unrecognised in individuals with NDDs, especially following non-death losses. The implications of these findings and recommendations for future research are discussed.
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