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Slide 10 - **Means Becoming Ends** Goodhart's Law - https://en.wikipedia.org/wiki/Goodhart%27s_law Slide 11 - My Open Science Journey: Arriving at Open Science CONP Publication and Commercialization Policies - https://conp.ca/publication-commercialization-policies/ Slide 12 - **Ethics and Open Science: Some History** Nurmberg Code - https://en.wikipedia.org/wiki/Nuremberg_Code Declaration of Geneva - https://en.wikipedia.org/wiki/Declaration_of_Geneva Declaration of Helsinki - https://en.wikipedia.org/wiki/Declaration_of_Helsinki FDA Regulations: Good Clnical Practice and Clinical Trials - https://www.fda.gov/science-research/clinical-trials-and-human-subject-protection/regulations-good-clinical-practice-and-clinical-trials NIH Research Ethics - https://oir.nih.gov/sourcebook/ethical-conduct/research-ethics Canada Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans - https://ethics.gc.ca/eng/policy-politique_tcps2-eptc2_2018.html Slide 16 - **Some Ethical Solutions - 1** The Neuro's C-BIG Repository - https://www.mcgill.ca/neuro/open-science/open-science-platforms/c-big-repository Slide 17 - **Some Ethical Solutions - 2** OpenNeuro Repository - https://openneuro.org/ Dryad Repository - https://datadryad.org/stash Dryad Data Curation Blog Post - https://blog.datadryad.org/category/data-curation-2/ Slide 18 - **Some Ethical Solutions - 3** Sage Bionetworks Nature Paper on Model-to-Data - https://www.nature.com/articles/nbt.4128 Korean Minstry of Health and Welfare OpenData4COVID-19 - https://rtrod-assets.s3.ap-northeast-2.amazonaws.com/static/tools/manual/COVID-19+website+manual_v2.1.pdf Slide 19 - **Finding What Works for You** Open by Design - https://www.nap.edu/catalog/25116/open-science-by-design-realizing-a-vision-for-21st-century OSF project with Report, Framework, and Consents - https://osf.io/4zfy5/ Open Brain Consent - https://open-brain-consent.readthedocs.io/en/stable/index.html Variability in the analysis of a single neuroimaging dataset by many teams (preprint) - https://www.biorxiv.org/content/10.1101/843193v1.full.pdf Slide 20 - **Publishing and Copyright - History** Untangling Academic Publishing: A history of the relationship between commercial interests, academic prestige and the circulation of research - https://zenodo.org/record/546100#.XufFZmhKg2x Slide 21 - Publishing - an Open Future Without IP BioRxiv - https://www.biorxiv.org/ MedRxiv - https://www.medrxiv.org/ PsyArXiv - https://psyarxiv.com/ McGill eScholarship - https://www.mcgill.ca/library/find/escholarship OpenAccessButton - https://openaccessbutton.org/ International Association of Advanced Materials (diamond open access) - https://www.iaamonline.org/diamond-open-access Slide 22 - **Inventions and Patents - History** Bayh-Dole Act - https://en.wikipedia.org/wiki/Bayh-Dole_Act Intellectual Property and Technology Transfer: Promoting Best Practices - https://www.ourcommons.ca/Content/Committee/421/INDU/Reports/RP9261888/indurp08/indurp08-e.pdf McGill Policy on Inventions and Software - https://www.mcgill.ca/research/files/research/policy_on_inventions_and_software.pdf Slide 23 - **Inventions and Patents - Few Successes and High Costs** Open Source Definition - https://opensource.org/osd How open source software took over the world - https://techcrunch.com/2019/01/12/how-open-source-software-took-over-the-world/ CBC - Breaking Down Walls of Scientific Secrecy - https://www.cbc.ca/news/health/biomedical-research-open-notebook-science-patent-drugs-pharmaceutical-academic-research-1.5176792 What is the cost of obtaining a US Patent - https://vpresearch.louisiana.edu/faq/what-cost-obtaining-u-s-patent/176 Open-Source Hardware Is a Low-Cost Alternative for Scientific Instrumentation and Research - https://m.scirp.org/papers/18950 The public science behind the ‘Merck’ Ebola vaccine - https://www.statnews.com/2020/01/16/public-science-behind-merck-ebola-vaccine/ Slide 24 - **Innovation - an Open Future Without IP** Vetting Existing Products and Services Y-Char-OS - https://ycharos.com/ Generation of Proof of Concept and Upstream Tools WDR5 Probe - https://news.oicr.on.ca/2019/01/first-in-class-drug-for-blood-cancers-discovered-by-ontario-researchers-receives-record-setting-industry-investment%EF%BB%BF/ Drug Discovery M4K Pharma - https://m4kpharma.com/ Open Source Malaria - http://opensourcemalaria.org/ NIH launches open science Alzheimer initiative - https://www.nature.com/articles/d41573-019-00187-5 Rapidly Emerging Antiviral Drug Discovery Initiative (READDI) - https://readdi.org/ Open Source Hardware Open Trons - https://opentrons.com/ Open Brain Computer Interface - https://openbci.com/ Open Electrophysiology - https://open-ephys.org/ UCLA Miniscope - http://miniscope.org/index.php/Main_Page Open Source Software BOSSDB - https://bossdb.org/ 3D Slicer - https://www.slicer.org/ Brainstorm - edu/brainstorm/Introduction More Examples Open-Neuroscience - https://open-neuroscience.com/en/ Slide 27 - **Use This Presentation for Free (please!)** Creative Commons Attribution License 4.0 - https://creativecommons.org/licenses/by/4.0/ Slide 28 - Links, Further Reading, and More Resources OSF Project for This Talk - https://osf.io/az8w3/
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