## Week Three: October 13 - 16 Our final week is a little shorter due to the Thanksgiving holiday. But never fear, we've still got a packed week in store for you. Our Tuesday and Wednesday sessions will focus on the collection and handling of sensitive data. On Thursday, we'll welcome three UBC researchers who will tell us about come of the challenges they've faced in their work. And, as always, office hours on Friday! <hr /> * Session 9: Introduction to Sensitive Data & De-identification * Session 10: Introduction to REDCap * Session 11: Data Horror Stories & Open Panel with UBC Researchers <hr /> ## Session 9: Introduction to Sensitive Data & De-identification **Date** October 13 **Time** 10:00am - 11:30am **Presenter** Nick Rochlin **Description** Data regarding human subjects can pose a number of unique challenges, and language that is articulated during the Ethics application and in consent forms has the potential to unnecessarily restrict what can be done with the data. This course will introduce considerations when dealing with sensitive data, including levels of access, consent forms, direct and indirect identifiers, and will introduce the process of data de-identification and considerations. Office hours to support this workshop will be held on Friday, 09 October. Please [register in advance](https://libcal.library.ubc.ca/event/3566647). **About the presenter** Nick Rochlin is the Research Data Management Specialist in UBC’s Advanced Research Computing team. He is active in the Portage Network of RDM professionals, co-chairing the Training Expert Group and the Institutional Strategies Working Group, and an active member of the FRDR User Experience & Training Group. ## Session 10: Introduction to REDCap **Date** October 14 **Time** 10:00am - 12:00pm **Presenter** Michael Tang **Description** The REDCap (Research Electronic Data Capture) platform is a secure web application for building and managing research data collection instruments. The platform is specifically designed to support online or offline data capture for research studies. The UBC ARC REDCap platform includes two instances of REDCap are available to the UBC research community. We’ll cover the REDCap basic features that you may need to meet your research projects’ data collection requirements, that includes: building data instruments and surveys, preparing data set exports, and managing user access control. We’ll also share some creative ways REDCap can be setup to help facilitate your research data collection workflow. **About the presenter** Michael Tang is a Scientific Analyst with the Advanced Research Computing team at UBC. He has a Bachelor of Applied Science in Computer Engineering from UBC. Michael has over five years of experience administering and supporting researchers with the use of the REDCap platform. ## Session 11: Data Horror Stories & Open Panel with UBC Researchers **Date** October 15 **Time** 10:00am - 11:30am **Presenters** Fiona McDonald, Jason Pither and Jeff LeDue **Description** This session will be divided into two parts. The first part will feature UBC researchers discussing their experiences with data management, with a focus on improper planning and unforeseen events that lead to a disruption (or horror story) in their research. The second part will feature a panel discussion in which UBC researchers will answer questions relating to data and RDM. **About the presenters** **Dr. Jason Pither** is an ecologist and principal investigator in the Biodiversity and Landscape Ecology Research Facility at UBC’s Okanagan campus. Since 2016, Dr. Pither has been collaborating with members of both UBC campuses to build capacity around training and support of best practices in Open Science. He is co-lead on UBC’s strategic Fostering Open Science @ UBC initiative. At both campuses he has delivered more than 20 seminars, guest lectures, and workshops on Open Science and reproducible workflows using R and R Markdown. Nevertheless, has some of his own data horror stories to share. **Dr. Fiona P. McDonald** is an Assistant Professor of Visual Anthropology at the University of British Columbia, Okanagan where she is the co-Director of the Collaborative + Experimental Ethnography Lab (www.ce2lab.org) where her research focuses on Climate Justice and Social Change. Her current research focuses on water rights, cold climate housing, sensory ethnography, and open access digital publishing. She is a founding member of the Ethnographic Terminalia Collective, which curated exhibitions at the intersections of art and anthropology from 2009–2019. Her ongoing research looks at historical and contemporary uses of woollen blankets when transformed by contemporary artists, craft makers, and Indigenous communities in North American and Aotearoa New Zealand. She supervises undergraduate and graduate students in community-based research projects. **Jeffrey LeDue** is the Managing Director of the NeuroImaging and NeuroComputation Centre and Coordinator of the Dynamic Brain Circuits Research Excellence Cluster at the Djavad Mowafaghian Centre for Brain Health at UBC Vancouver Campus. His expertise spans microscopy, imaging, optogenetics, custom hardware and data analysis pipelines. He has co-authored over 30 papers with 9 PI’s since joining UBC in 2010. Prior to UBC, he was the Vision Science Imaging Specialist in the Department of Molecular and Cell Biology and School of Optometry at the University of California, Berkeley and worked on near-field optics and biological atomic force microscopy in the Department of Physics at McGill University in Montreal.